LIFE SPAN/EXPECTANCY OF THALASSEMIA MAJOR PATEINTS

LIFE EXPECTANCY OF THALASSEMIA MAJOR PATIENTS HAS IMPROVED SO MUCH OVER THE YEARS, FROM TEENS, 20's TO NOW HEARD OF PATIENTS IN THEIR 50's, 60's AND EVEN IN THEIR 70's, LIFE EXPECTANCY HAS INCREASE SO MUCH BECAUSE OF THE IRON CHELATORS, DESFERAL, L1, EXJADE AND SOME OTHER NATURAL IRON CHELATOR THAT HELP THALASSEMIA MAJOR PATIENT TO GET RID OF EXCESS IRON IN THE BODY AND REVERSE THE SITUATION OF DAMAGE TO THE BODY CAUSE BY EXCESS IRON/IRON OVERLOAD PROBLEM. THALASSEMIA QUALITY OF LIFE HAS IMPROVED SO MUCH OVER THE YEAR, PEOPLE ARE NOW HOPING THERE ARE NEW SOLUTION TO TAKE OVER BLOOD TRANSFUSION PROCESS AND WHO KNOW THERE WILL BE CURE FOR THALASSEMIA MAJOR PATIENTS NOT LONG IN THE FUTURE, WILL GENE THERAPY BE THE CURE AND THE NEXT BIG THING FOR THALASSEMIA MAJOR PATIENTS ? TELL ME WHAT YOU THINK AND YOUR VIEW ABOUT THAT. SO THAT'S THE END OF THIS BLOG POST HOPE YOU ENJOY READING IT AND I WILL SEE YOU IN MY NEXT BLOG POST.

TREATMENT FOR THALASSEMIA MAJOR PATIENTS

HERE ARE THE TREATMENTS FOR THALASSEMIA MAJOR THAT I KNOW OF, ARE THERE OTHER TREATMENT YOU KNOW OR HEARD BESIDE THESE BELOW PLEASE SHARE WITH ME, I WOULD BE GLAD TO HEAR FROM YOU.

---> CHRONIC TRANSFUSION THERAPY

---> SPLENECTOMY

---> BONE MARROW TRANSPLANTS

---> ALLOGENEIC HEMATOPOIETIC TRANSPLANTAION

---> GENE THERAPY

FULL BLOOD COUNT FOR THALASSEMIA MAJOR PATIENTS

Thalassemia major patients should try to maintain a pre-transfusion hb (Blood Count) level of at least 9.5 in order to stay in their best condition. My personal pre-transfusion hb is around 9-9.5 or even sometimes will drop/fell below 8.0 even though I try my best to keep it as high as possible and wish it will be, that might due to more activities going on with Me, so that it for now and I will see you later.

BLOOD TRANSFUSION FOR THALASSEMIA MAJOR PATIENT

IRON CHELATION DESFERAL INJECTION PUMP

DESFERAL PUMP IS A IRON CHELATION MACHINE THAT'S USED TO GET OF IRON OVERLOAD IN THE BODY DUE TO BLOOD TRANSFUSION. IT HAD BEEN USED SINCE LONG TIME AGO BEFORE ORAL IRON CHELATION DRUG IS OUT IN THE MARKET, IT CONSIST OF A BUTTERFLY NEEDLE CONNECTED TO A INJECTION PUMP WITH DESFERAL IN IT LEFT OVERNIGHT NORMALLY AROUND 8-10 HOURS TILL THE DESFERAL IN THE INJECTION PUMP IS EMPTY. THE MACHINE IS OPERATED BY A BATTERY, EVERY FEW MINUTE OR SO THE PUMP WILL MOVE FORWARD LITTLE BY LITTLE TILL THE INJECTION PUMP IS EMPTY, THERE WILL BE A SMALL SOUND EVERY FEW MINTUES IF NOT WRONG MEANING THE INJECTION PUMP IS MOVING FORWARD SLOWLY.THE DISADVANTAGES OF COURSE IS WHEN YOU ARE SLEEPING WHEN FLIPPING AROUND WILL FEEL UNCOMFORTABLE DUE TO THE MACHINE IS PUSHING ONTO YOUR CHEST AND MAY CAUSE SWOLLEN WHEN TAKING OUT THE NEEDLE FROM YOUR SKIN AND THE AREA MIGHT BE HARD FOR RECENT INJECTION AGAIN.EVEN NOW IF YOU ARE TAKING L1 OR EXJADE AND NEVER NEED YOUR DESFERAL PUMP AGAIN YOU HATE IT BECAUSE IT CAUSES SO MANY PROBLEM, BUT IF I WILL YOU I WILL KEEP IT BECAUSE IT'S A EXPENSIVE PUMP AND YOU WILL NEVER KNOW YOU ONE DAY YOU MIGHT NEED IT OR SOMEONE MAY NEED THAT MORE THAT YOU SO IT DEPEND ON YOU TO DONATE IT OR KEEP IT JUST IN CASE. SO THAT'S THE END OF THIS POST HOPEFULLY ENJOY IT PLS LEAVE ME ANY COMMENT AND SUGGESTION OF WHAT YOU THINK, AND I WILL SEE YOU SOON. PEACE